New York State Government Information Locator Service
ILS provides a single point of access to information provided by State Government Agencies, the State Legislature, and the Judiciary.
email: nyslweb@mail.nysed.gov

New York State Government Public Phone Directory
The site (NYS Office for Technology) lists phone numbers from State agencies and organizations including NYS Congress Members, NYS Assembly Offices, NYS Senate Offices, and toll-free numbers. 

New York State Commission on Quality of Care and Advocacy for Persons with Disabilities (CQCAPD)
As the successor agency to the former Commission on Quality of Care for the Mentally Disabled and the Office of Advocate for Persons with Disabilities, CQCAPD serves as an advocate and a resource for individuals of all ages with all types of disabilities.

New York State Office of Mental Retardation and Developmental Disability (OMRDD)
"OMRDD's mission is to coordinate and provide services for people with developmental disabilities and their families and to conduct research into the causes and prevention of developmental disabilities." 

New York City:

New York City Council
Aims to provide a "window into government in New York City." Has current information on Scheduled Hearings and State Meetings, as well as information about the legislation and Council activities.

NYC Link
"The official New York City World Wide Web Site."

Public Advocate for the City of New York
A message from public advocate, Betsy Gotbaum.
email: bgotbaum@pubadvocate.nyc.gov

Other N.Y. State and Local Gov't Internet Resources:

Senator Schumer's Page
313 Hart Senate Office Building
United States Senate (202) 224-6542
Washington, DC 20510-3202
email: senator@schumer.senate.gov

Senator Clinton's Page
476 Russell Senate Office Building
United States Senate (202) 224-4451
Washington, DC 20510-3201
email: senator@clinton.senate.gov

FirstGov for Nonprofits
FirstGov for Nonprofits is a network of links to Federal government information and services. One can access an abundance of information simply by searching a department, such as Health and Human Services, or performing a master search using a topic such as developmental disabilities or mental retardation.

The President's Committee for People with Intellectual Disabilities (PCPID) 
formerly known as The President's Committee on Mental Retardation

U.S. House of Representatives
Write Your Representative is a direct link to elected representatives. Simply enter your state and zip code to connect with a blank, pre-addressed form.

SSA Home Page
Official Website of the Social Security Administration
question form:  http://www.ssa.gov/feedback/index.htm

United States Department of Education:
IDEA 2004 News, Information and Resources - Special section with news, information and resources on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.

United States Department of Health and Human Services:
Office on Disability - The Office On Disability oversees the implementation and coordination of disability programs, policies and special initiatives for 54 million person with disabilities. 

Region II (New York City) Administration for Children and Families (ACF) Website
The ACF's website includes information on program services and links to various resources.  Portions of the site contain Spanish translations.

The Council for Exceptional Children
"The CEC is dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.  CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professions obtain conditions and resources necessary for effective professional practice."

National Clearinghouse for Professions in Special Education
NCPSE is committed to enhancing the nation's capacity to recruit, prepare, and retain well qualified diverse educators and related service personnel for children with disabilities. 
This site provides information for professionals and students in special education. Sub-links: About NCPSE, Professional Preparation Programs, Personnel Supply and Demand, Job Search Information, Support Networks, and Careers in Special Education Related Services.

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EASI: Equal Access to Software and Information
"EASI's mission is to serve as a resource by providing information and guidance in the area of access-to-information technologies by individuals with disabilities.  They stay informed about developments and advancements within the adaptive computer technology field and spread that information to colleges, universities, K-12 schools, libraries and into the workplace."

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JAN (Job Accommodation Network)
"The Job Accommodation Network is a service of the Office of Disability Employment Policy (ODEP) of the U.S. Department of Labor.  JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities and related subjects." 
email: jan@jan.wvu.edu

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National Dissemination Center for Children with Disabilities (formerly known as National Information Center for Children and Youth With Disabilities)
An information and referral center focusing on disabilities and disability-related issues for children and youth (birth to age 22)
email: nichcy@aed.org

The Future of Children
"The Future of Children seeks to promote effective policies and programs for children by providing policymakers, service providers, and the media with timely, objective information based on the best available research.  The Future of Children is a publication of The Woodrow Wilson School of Public and International Affairs at Princeton University and The Brookings Institution. Current and past publications are available on the the website."

Facts for Families
The American Academy of Child and Adolescent Psychiatry provides 92 information sheets to assist parents and families in dealing with issues and psychiatric disorders in children and adolescents.

Family Education Network
The goal of this network is to reinforce the connection between schools and families in order to help children to succeed in both school and life. The website contains information on special needs, learning disabilities, college options and homework tips. 

Family Village
The Family Village at the Waisman Center at the University of Wisconsin - Madison is "a global community that integrates information, resources, and communication opportunities. Sublinks are arranged in the form of a village, so that a visitor may "stop by" any of the following: library, coffee shop, hospital, shopping mall, post office, house of worship, school, recreation, community center, bookstore, university, and information center.
email: familyvillage@waisman.wisc.edu

Parents Helping Parents
"PHP is a 30-year-old nonprofit, family resource center that benefits children with special needs.  A parent-directed, community-based organization, PHP's mission was developed in response to the need in the community for information, training, and support services for families who have children with special needs and the professionals who serve them."
email: info@php.com

Exceptional Parent Magazine
"Exceptional Parent's on-line resource providing information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them." 

Sibling Support Project
(www.siblingsupport.org)
Designed to address sibling issues in families with individuals with special health and developmental needs. Highlights include lists of sibling programs in the US and Canada, of sibling-related resources, information on conducting workshops on the topic, and SibNet, "the world's first list service just for siblings of people with special needs."
email: donmeyer@siblingsupport.org

The New Hampshire Challenge
The New Hampshire Challenge is a NH nonprofit organization whose primary work is the free publication of a statewide quarterly newspaper meant to disseminate important information to families (over 7000 households receive the publication) who have disabled members.

Our Kids
"The Our-Kids website supports the Our-Kids email list which consists of over 800 people representing children of varying diagnosis; everything from indefinite developmental delays and sensory integration problems, to cerebral palsy, to rare genetic disorders.  Over 35 countries are represented on the list now."

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President's Committee for People with Intellectual Disabilities
formerly known as the President's Committee on Mental Retardation

Policy Information Exchange (PIE)
"The primary purpose of PIE Online is to provide a comprehensive web-based source for information related to mental health, substance abuse, and disability policy, including a searchable database of over 5,000 documents."

The Americans With Disabilities Act (P.L. 101-336)
The ADA Home Page

Americans With Disabilities Act Document Center
Information on all titles of the ADA.

IDEA 2004 News, Information and Resources - Special section of the U.S. Department of Education's website which includes news, information and resources on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.

Thomas Legislative Information on the Internet
"Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public," the site currently offers sections on: "Activity in Congress," "Bills, Resolutions," the "Congressional Record," "Committee Information," "For Teachers," "Treaties," and "Government Resources."

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NARIC - National Rehabilitation Information Center
NARIC is a library and information center providing interactive information to the disability and rehabilitation community.  NARIC's website offers online publications, searchable databases, and timely reference and referral data.

National Early Childhood Technical Assistance Center (NECTAC)
"The National Early Childhood Technical Assistance Center supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA).  Their mission is to strengthen service systems to ensured that children with disabilities (birth through five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services."
email: nectac@unc.edu

Center on Human Policy, Law, and Disability Studies - Syracuse University
"The Center on Human Policy, Law and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy.  The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society."

Center for Opportunities and Outcomes for People with Disabilities - Teachers College, Columbia University
"The Center for Opportunities and Outcomes for People with Disabilities supports research, evaluation and demonstration efforts aimed at increasing opportunities for individuals with disabilities to become fully included members of society." In addition to detailing current O&O research projects, student opportunities, and center priorities and services, the website profiles center personnel and contains a frequently updated O&O events calendar, as well as the most recent O&O newsletter.

Centre for Disability Studies - University of Leeds (England)
"CDS is an interdisciplinary centre for teaching and research in the field of disability studies at the University of Leeds (England).  The Centre incorporates and develops the work of the former Disability Research Unit (DRU)." 
Contact: disability-studies@leeds.ac.uk

The Fragile X Research Foundation (FRAXA)
"FRAXA Research Foundation supports research aimed at finding a effective treatments and a cure for all children and adults with Fragile X, the most common inherited cause of mental impairment and the most common known cause of autism."
Contact:  info@fraxa.org

Kansas Mental Retardation and Developmental Disabilities Research Center (MRDDRC)
"The mission of the Kansas MRDDRC is to support high quality basic and applied research relevant to the causes and prevention of mental retardation and developmental disabilities.  They also support research aimed at the prevention and remediation of some of the many secondary conditions associated with mental retardation and developmental disabilities, such as difficulty in language acquisition and behavior problems."

Vanderbilt Kennedy Center for Research on Human Development
"The Vanderbilt Kennedy Center is an interdisciplinary research, training, diagnosis, and treatment institute, embracing faculty and resources available through Vanderbilt University Medical Center, the College of Arts and Science, and Peabody College." 

The Susan Gray School - Peabody College, Vanderbilt University
"The Susan Gray School, originally named the Peabody Experimental School, opened in 1968 as an on-campus research-oriented school devoted to educational research involving young children with developmental disabilities and children whose future development was at risk because of conditions such as poverty." 

School-to-Work Outreach Project, Inst. on Community Integration, University of Minnesota
"The School-to-Work Outreach Project (STWOP) was a nationwide, three year project funded by the U.S. Department of Education to improve school-to-work activities including students with disabilities by identifying and sharing school-to-work models/practices/strategies that work, encouraging others to adopt or replicate those models."
Contact: Email Teri Wallace at: walla001@tc.umn.edu

UCLA Mental Retardation Research Center
Center devoted to the acquisition of new knowledge on mental retardation and related aspects of human development and the training of research personnel.

Waisman Center at University of Wisconsin -- Madison
"The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases throughout the lifespan.  The center is one of nine national facilities that include a Mental Retardation Developmental Disabilities Research Center and a University Center for Excellence in Developmental Disabilities."

Association of University Centers on Disabilities
"The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) is a 501(c) non-profit organization that promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC)."
email: info@aucd.org

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NYSARC Inc.
NYSARC is the State organization in which AHRC New York City is a local chapter. This Website contains listings of all the ARC's in the State, and additional links to homepages devoted to providing information on developmental disabilities, special education, family support, health care reform, and related publications.
email: info@nysarc.org

ARC of the Desert
ARC of the Desert is AHRC's counterpart in California's Palm Springs area. Their site contains information about their organization, the services they provide, and upcoming events, as well as links to related sites.

email: foundation@desertarc.org

Sprout N.Y.
Sprout is a private, non-profit organization in New York City which offers travel and recreational opportunities to people with developmental disabilities.

email: Staff@GoSprout.org

The Arc's WWW site
The Association for Retarded Citizens offers one of the most comprehensive sites available on the internet.

Site offers the following as in-depth subsections:

1. Fact sheets on topics related to MR, including services/support, the ADA, social security, community living/employment, prevention, education, community integration reports, MR/related conditions, and others...

2. Descriptions of the research and programmatic activities of the ARC's Department of Research and Program Services.

3. A Governmental Affairs page with descriptions of their Governmental Affairs Office's major activities, publications, training materials (for advocates), and an excellent directory with links to information about connecting with the federal government (http://TheArc.org/ga/fedcon.html).

4. An amazing list of links to other disability-related sites on the WWW.

Rick Berkobien: rberkobi@metronet.com

Michael Wehmeyer: mwehmeye@metronet.com

general: Info@thearc.org

governmental affair office: GAOinfo@thearc.org

New York State Rehabilitation Association (NYSRA)
NYSRA is a statewide not-for-profit organization with a growing membership of over 140 agencies serving people from all disability groups. NYSRA is dedicated to improving services for people with disabilities and actively represents the Rehabilitation provider community of New York State. The website is a good resource for rehabilitation information, training, communication, networking and advocacy.

email: nysra@nyrehab.org

Bethphage
Pronounced BETH-fuh-jee, this affiliated ministry of the Evangelical Lutheran Church of America serves persons with DD and their families, in 16 states, Great Britain, and Latvia.

Contact: general: webmaster@bethpage.org

Devereux
Provider of treatment for individuals of all ages with emotional, behavioral, and developmental disabilities offers services in hospital, campus-based, community, and outpatient settings. Devereux is located in the District of Colombia.

email: info@devereux.org

Elwyn, Inc.
International non-profit human services organization serving people with mental and physical disabilities, mental illness, the elderly, emotionally troubled and economically disadvantaged people.

email: rick@elwyn.org

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Different Roads to Learning
"Online catalog specializing in playthings for the learning challenged." Provides educational toys which stimulate the skills leading to speech and language learning in children ages 2-9.

Contact: julie@difflearn.com

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Autism
National Organizations and Resources
Autism Society of America 
Autism-PDD Resources Network
Autism Resources
Cure Autism Now (CAN) Foundation
Autism Links
Autism Info.Com
ABA Resources

Regional Supports and Resources
New York Families for Autistic Children

New Jersey Center for Outreach and Services for the Autism Community (COSAC)

Autism Newsgroup   news:bit.listserv.autism
A collection of posted messages from consumers, professionals, government officials, teachers, parents, and others, for discussion of the topic of Autism. Anyone may "post news," or contribute to the newsgroup.

Brain Injury Association, Inc.
A comprehensive site which includes information on brain injury prevention, research, education, advocacy, treatment and rehabilitation along with many other resources. A National Directory of Brain Injury Rehabilitation Services is available for purchase (16 dollars) and contains a collection of various services which include social workers, physicians, attorneys, home health agencies and more. The form to be placed in this directory is also available on this site. 

Brain Injury Association of Connecticut
Inform visitors about available sources of help to individuals with head injury. This site has links to several resources specific to the state of Connecticut, but also provides a definition of TBI and several more general resources.

email: online form, or don@pyers.com

Cerebral Palsy Newsgroup
A collection of posted messages from consumers, professionals, government officials, teachers, parents and others, for discussion of the topic of Cerebral Palsy. Anyone may "post news", or contribute to a newsgroup.

National Association of Developmental Disabilities Councils
"The Mission of the National Association of Developmental Disabilities Councils is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils." Includes information about NADDC, public policy info., ADD news, a DD Council directory, council resource file, and the "council meeting place," for information exchange between councils.

email: mgray@naddc.org

Developmental Disabilities Centre
From the University of Alberta Developmental Disabilities Centre includes policy statements, "The Developmental Disabilities Bulletin," information on the "International Coalition on Abuse and Disability," abstracts and papers, other projects and initiatives, workshops and conferences, and several volumes of the "Ethics and Disability Newsletter."

email: (about org.) lorraine.macpherson@ualberta.ca

Down Syndrome Newsgroup
A collection of posted messages from consumers, professionals, government officials, teachers, parents and others, for discussion of the topic of Down syndrome. Anyone may "post news", or contribute to a newsgroup.

Down Syndrome WWW Page
Compiled from the contributions of members of the Down Syndrome Listserv. Includes information on Down Syndrome, other Internet resources, and the "Our Brag Book."

Contact: trace@nas.com

Intellectual Disability Information System
Information from Monash University, Melbourne, Australia. Includes information about the following: general information on the IDIS; medical issues; family, development, and other life issues; behavioral issues; legal and ethical issues; accommodation; employment of the Intellectually Disabled; education and educational services; professional development of workers in the field of intellectual disability; socio-cultural issues in intellectual disability; communication; advocacy issues; computers and disability; leisure/recreation; funding for research into issues concerning the intellectually disabled; other issues; and bulletin/notice boards.

email: Robert.Davis@med.monash.edu.au

The American Association on Mental Retardation
AAMR is the oldest and largest interdisciplinary organization of professionals and others concerned about mental retardation and related disabilities. Site contains a description of programs and services, member information, a mission statement, and a statement of policies and positions.

email: aamr@access.digex.net

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email: diversity@umail.umd.edu

email: webmaster@eka.com

email: online form, or jlubin@eskimo.com

email: jlborja@inform.umd.edu

email: Leber@umich.edu

email: Mack@waisman.wisc.edu

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