RESOURCES
A great deal of information that can assist individuals with intellectual and other developmental disabilities, and their families, is available and accessible online. We encourage you to visit and take advantage of the resources below. Should you have additionial resources that you feel would be useful to our community, please email them to us using our feedback form so that we can add them to our list.
New York and Local
New York State:
New York State Website
New York State Government Information Locator Service
ILS provides a single point of access to information provided by State Government Agencies, the State Legislature, and the Judiciary.
email: nyslweb@mail.nysed.gov
New York State Government Public Phone Directory
The site (NYS Office for Technology) lists phone numbers from State agencies and organizations including NYS Congress Members, NYS Assembly Offices, NYS Senate Offices, and toll-free numbers.
New York State Commission on Quality of Care and Advocacy for Persons with Disabilities (CQCAPD)
As the successor agency to the former Commission on Quality of Care for the Mentally Disabled and the Office of Advocate for Persons with Disabilities, CQCAPD serves as an advocate and a resource for individuals of all ages with all types of disabilities.
New York State Office of Mental Retardation and Developmental Disability (OMRDD)
"OMRDD's mission is to coordinate and provide services for people with developmental disabilities and their families and to conduct research into the causes and prevention of developmental disabilities."Adult Day Center Finder
Adult day care centers are senior care locations that are open during normal business hours and provide various care services, supervision and social interaction for the elderly.
New York City:
New York City Council
Aims to provide a "window into government in New York City." Has current information on Scheduled Hearings and State Meetings, as well as information about the legislation and Council activities.
NYC Link
"The official New York City World Wide Web Site."
Public Advocate for the City of New York
A message from public advocate, Betsy Gotbaum.
email: bgotbaum@pubadvocate.nyc.gov
Other N.Y. State and Local Gov't Internet Resources:
New York State Association of Counties
Senator Schumer's Page
313 Hart Senate Office Building
United States Senate (202) 224-6542
Washington, DC 20510-3202
email: senator@schumer.senate.gov
Senator Clinton's Page
476 Russell Senate Office Building
United States Senate (202) 224-4451
Washington, DC 20510-3201
email: senator@clinton.senate.gov
State LibraryFederal Government
FirstGov for Nonprofits
FirstGov for Nonprofits is a network of links to Federal government information and services. One can access an abundance of information simply by searching a department, such as Health and Human Services, or performing a master search using a topic such as developmental disabilities or mental retardation.
The President's Committee for People with Intellectual Disabilities (PCPID)
formerly known as The President's Committee on Mental Retardation
U.S. House of Representatives
Write Your Representative is a direct link to elected representatives. Simply enter your state and zip code to connect with a blank, pre-addressed form.
SSA Home Page
Official Website of the Social Security Administration
question form: http://www.ssa.gov/feedback/index.htm
United States Department of Education:
IDEA 2004 News, Information and Resources - Special section with news, information and resources on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.
United States Department of Health and Human Services:
Office on Disability - The Office On Disability oversees the implementation and coordination of disability programs, policies and special initiatives for 54 million person with disabilities.
Region II (New York City) Administration for Children and Families (ACF) Website
The ACF's website includes information on program services and links to various resources. Portions of the site contain Spanish translations.
The White House
U.S. Senate Web Server
U.S. House of Representatives Web Server
The Council for Exceptional Children
"The CEC is dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professions obtain conditions and resources necessary for effective professional practice."
National Clearinghouse for Professions in Special Education
NCPSE is committed to enhancing the nation's capacity to recruit, prepare, and retain well qualified diverse educators and related service personnel for children with disabilities.
This site provides information for professionals and students in special education. Sub-links: About NCPSE, Professional Preparation Programs, Personnel Supply and Demand, Job Search Information, Support Networks, and Careers in Special Education Related Services.Technology
EASI: Equal Access to Software and Information
"EASI's mission is to serve as a resource by providing information and guidance in the area of access-to-information technologies by individuals with disabilities. They stay informed about developments and advancements within the adaptive computer technology field and spread that information to colleges, universities, K-12 schools, libraries and into the workplace."
Employment & Educational Opportunities
JAN (Job Accommodation Network)
"The Job Accommodation Network is a service of the Office of Disability Employment Policy (ODEP) of the U.S. Department of Labor. JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities and related subjects."
email: jan@jan.wvu.eduFamily & Sibling
National Dissemination Center for Children with Disabilities(formerly known as National Information Center for Children and Youth With Disabilities)
An information and referral center focusing on disabilities and disability-related issues for children and youth (birth to age 22)
email: nichcy@aed.org
The Future of Children
"The Future of Children seeks to promote effective policies and programs for children by providing policymakers, service providers, and the media with timely, objective information based on the best available research. The Future of Children is a publication of The Woodrow Wilson School of Public and International Affairs at Princeton University and The Brookings Institution. Current and past publications are available on the the website."Facts for Families
The American Academy of Child and Adolescent Psychiatry provides 92 information sheets to assist parents and families in dealing with issues and psychiatric disorders in children and adolescents.Family Education Network
The goal of this network is to reinforce the connection between schools and families in order to help children to succeed in both school and life. The website contains information on special needs, learning disabilities, college options and homework tips.Family Village
The Family Village at the Waisman Center at the University of Wisconsin - Madison is "a global community that integrates information, resources, and communication opportunities. Sublinks are arranged in the form of a village, so that a visitor may "stop by" any of the following: library, coffee shop, hospital, shopping mall, post office, house of worship, school, recreation, community center, bookstore, university, and information center.
email: familyvillage@waisman.wisc.eduParents Helping Parents
"PHP is a 30-year-old nonprofit, family resource center that benefits children with special needs. A parent-directed, community-based organization, PHP's mission was developed in response to the need in the community for information, training, and support services for families who have children with special needs and the professionals who serve them."
email: info@php.comExceptional Parent Magazine
"Exceptional Parent's on-line resource providing information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them."
Sibling Support Project
(www.siblingsupport.org)
Designed to address sibling issues in families with individuals with special health and developmental needs. Highlights include lists of sibling programs in the US and Canada, of sibling-related resources, information on conducting workshops on the topic, and SibNet, "the world's first list service just for siblings of people with special needs."
email: donmeyer@siblingsupport.orgThe New Hampshire Challenge
The New Hampshire Challenge is a NH nonprofit organization whose primary work is the free publication of a statewide quarterly newspaper meant to disseminate important information to families (over 7000 households receive the publication) who have disabled members.Our Kids
"The Our-Kids website supports the Our-Kids email list which consists of over 800 people representing children of varying diagnosis; everything from indefinite developmental delays and sensory integration problems, to cerebral palsy, to rare genetic disorders. Over 35 countries are represented on the list now."Information on Policy & Legislation
President's Committee for People with Intellectual Disabilities
formerly known as the President's Committee on Mental RetardationPolicy Information Exchange (PIE)
"The primary purpose of PIE Online is to provide a comprehensive web-based source for information related to mental health, substance abuse, and disability policy, including a searchable database of over 5,000 documents."The Americans With Disabilities Act (P.L. 101-336)
The ADA Home PageAmericans With Disabilities Act Document Center
Information on all titles of the ADA.IDEA 2004 News, Information and Resources - Special section of the U.S. Department of Education's website which includes news, information and resources on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.
Thomas Legislative Information on the Internet
"Acting under the directive of the leadership of the 104th Congress to make Federal legislative information freely available to the Internet public," the site currently offers sections on: "Activity in Congress," "Bills, Resolutions," the "Congressional Record," "Committee Information," "For Teachers," "Treaties," and "Government Resources."
Research & University-Affiliated Programs and Organizations
NARIC - National Rehabilitation Information Center
NARIC is a library and information center providing interactive information to the disability and rehabilitation community. NARIC's website offers online publications, searchable databases, and timely reference and referral data.National Early Childhood Technical Assistance Center (NECTAC)
"The National Early Childhood Technical Assistance Center supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA). Their mission is to strengthen service systems to ensured that children with disabilities (birth through five) and their families receive and benefit from high quality, culturally appropriate, and family-centered supports and services."
email: nectac@unc.eduCenter on Human Policy, Law, and Disability Studies - Syracuse University
"The Center on Human Policy, Law and Disability Studies (CHPLDS) is an expansion of the Center on Human Policy. The Center is a network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society."
Center for Opportunities and Outcomes for People with Disabilities - Teachers College, Columbia University
"The Center for Opportunities and Outcomes for People with Disabilities supports research, evaluation and demonstration efforts aimed at increasing opportunities for individuals with disabilities to become fully included members of society." In addition to detailing current O&O research projects, student opportunities, and center priorities and services, the website profiles center personnel and contains a frequently updated O&O events calendar, as well as the most recent O&O newsletter.Centre for Disability Studies - University of Leeds (England)
"CDS is an interdisciplinary centre for teaching and research in the field of disability studies at the University of Leeds (England). The Centre incorporates and develops the work of the former Disability Research Unit (DRU)."
Contact: disability-studies@leeds.ac.ukThe Fragile X Research Foundation (FRAXA)
"FRAXA Research Foundation supports research aimed at finding a effective treatments and a cure for all children and adults with Fragile X, the most common inherited cause of mental impairment and the most common known cause of autism."
Contact: info@fraxa.orgThe Intellectual and Developmental Disabilities Research Center
"The Intellectual and Developmental Disabilities Research Center (IDDRC, formerly MRDDRC) at The Children's Hospital of Philadelphia and the University of Pennsylvania was established in 1990 with the support of the National Institute of Child Health and Human Development. The goals of the center are: (1) to make available core laboratory services that support research in the field of developmental disabilities; (2) to encourage new projects by sponsoring seminars, lectures and visiting professorships; (3) to enhance inter-disciplinary research; (4) to improve methods for the diagnosis and treatment of developmental disabilities; (5) to bring young investigators into the field through a New Program Development Award."Vanderbilt Kennedy Center for Research on Human Development
"The Vanderbilt Kennedy Center is an interdisciplinary research, training, diagnosis, and treatment institute, embracing faculty and resources available through Vanderbilt University Medical Center, the College of Arts and Science, and Peabody College."
The Susan Gray School - Peabody College, Vanderbilt University
"The Susan Gray School, originally named the Peabody Experimental School, opened in 1968 as an on-campus research-oriented school devoted to educational research involving young children with developmental disabilities and children whose future development was at risk because of conditions such as poverty."UCLA Mental Retardation Research Center
Center devoted to the acquisition of new knowledge on mental retardation and related aspects of human development and the training of research personnel.Waisman Center at University of Wisconsin -- Madison
"The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases throughout the lifespan. The center is one of nine national facilities that include a Mental Retardation Developmental Disabilities Research Center and a University Center for Excellence in Developmental Disabilities."Association of University Centers on Disabilities
>"The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) is a 501(c) non-profit organization that promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC)."
email: info@aucd.org
Disability Organizations on the Web
NYSARC Inc.
NYSARC is the State organization in which AHRC New York City is a local chapter. This Website contains listings of all the ARC's in the State, and additional links to homepages devoted to providing information on developmental disabilities, special education, family support, health care reform, and related publications.
email: info@nysarc.orgSprout
Sprout offers programs for people with developmental disabilities living in New York City which include travel, recreational opportunities and a film project and festival.The Arc
The national community based organization, which includes over 850 state and local chapters, provides an array of services and supports for individuals with intellectual and developmental disabilities and their families. The site is a great resource for information and has a local chapter search function.
contact: info@thearc.orgNew York State Rehabilitation Association (NYSRA)
NYSRA is a statewide not-for-profit organization with a growing membership of over 130 agencies serving people from all disability groups. NYSRA is dedicated to improving services for people with disabilities and actively represents the Rehabilitation provider community of New York State. The website is a good resource for rehabilitation information, training, communication, networking and advocacy.
email: nysra@nyrehab.org
Devereux
Provider of treatment for individuals of all ages with emotional, behavioral, and developmental disabilities offering services nationally with centers in Arizona, California, Colorado, Connecticut, Florida, Georgia, Massachusetts, New Jersey, New York, Pennsylvania, and Texas.Elwyn
Elwyn is a non-profit human services organization serving people of all ages with special needs. They offer support programs in Pennsylvania, Delaware, New Jersey, and California.
email: info@Elwyn.org
National Association of Developmental Disabilities Councils
"The Mission of the National Association of Developmental Disabilities Councils is to promote national policy which provides individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community; and to provide support and assistance to member Councils." Includes information about NADDC, public policy info., ADD news, a DD Council directory, council resource file, and the "council meeting place," for information exchange between councils.
J.P. Das Developmental Disabilities Centre
The University of Alberta Developmental Disabilities Centre provides information on Research, Education and Resources for parents and teachers.
The American Association on Intellectual and Developmental Disabilities (AAIDD)
AAIDD (formerly AAMR) is the oldest and largest interdisciplinary organization of professionals and others concerned about mental retardation and related disabilities. Site contains a description of programs and services, member information, a mission statement, and a statement of policies and positions.
Assistive Technology & Educational Aids
Different Roads to Learning
"Online store and catalog contains over 300 products, including books, flashcards, and videos, along with other materials critical to Applied Behavior Analysis and Verbal Behavior programs."Disability-Specific Resources (Alphabetical by Disability)
Autism Society of America
Autism-PDD Resources Network
Autism Resources
Autism Speaks
Autism Info.Info
ABA Resources
Regional Supports and ResourcesNew York Families for Autistic Children
New Jersey Center for Outreach and Services for the Autism Community (COSAC)
Autism Newsgroup news:bit.listserv.autism
A collection of posted messages from consumers, professionals, government officials, teachers, parents, and others, for discussion of the topic of Autism. Anyone may "post news," or contribute to the newsgroup.Brain Injury Association, Inc.
A comprehensive site which includes information on brain injury prevention, research, education, advocacy, treatment and rehabilitation along with many other resources.
Brain Injury Association of Connecticut
Cerebral Palsy Newsgroup
A collection of posted messages from consumers, professionals, government officials, teachers, parents and others, for discussion of the topic of Cerebral Palsy. Anyone may "post news", or contribute to a newsgroup.Down Syndrome Newsgroup
A collection of posted messages from consumers, professionals, government officials, teachers, parents and others, for discussion of the topic of Down syndrome. Anyone may "post news", or contribute to a newsgroup
Regional Organizations
NYSARC, formerly the New York State Association for Retarded Citizens, with 52 Chapters, of which AHRC New York City is the New York City Chapter.
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
The New York State Legislative Action Center, sponsored by InterAgency Council of Mental Retardation and Developmental Disabilities Agencies, Inc., offers up to date information on many legislative issues surrounding individuals with developmental disabilities.
The Brain Injury Association of America (BIAA) is the leading national organization serving individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI).
Since 1876, the American Association on Intellectual and Developmental Disabilities (AAIDD) has been providing worldwide leadership in the field of mental retardation.
The New York State Association of Community and Residential Agencies has been a leading advocate for public policies and practices that support and value the lives of individuals with developmental disabilities.
SANYS, The Self-Advocay Association of New York State is a not-for-profit, grassroots organization run by and for people with developmental disabilities, founded in 1986.
resources
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