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-Sibling
Archive















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AHRC New York
City
83 Maiden Lane
New York, NY 10038
(212) 780-2500
TDD/TTY:
1-(800) 662-1220 |
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13th Annual Helen & Jack Gorelick
Sibling Scholarship
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Do you have a brother or sister with Developmental Disabilities?
If so, you may be eligible for the 13th Annual "Helen & Jack Gorelick
Sibling Scholarship." Two awards will be given in the amount
of $1000.00 each. For more information, please download the
application form and the eligibility requirements (pdf).
Submission deadline for application is March 15, 2010. The
award will be given at the Annual Meeting on June 10, 2010. |
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SIB is written by members of the Sibling Committee of the AHRC Board of
Directors and is produced and disseminated by AHRC. Past SIB issues are
available here for download in pdf form or abstracts for viewing
online. If you
would like to become part of the sibling mailing list, fill out our
Information Request Form, or call
Annette Spallino at 212-780-2592. |
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SIB
Winter 2008 - Planning for Emergencies
SIB
Winter 2008 - Guardianship
SIB
Winter 2005 - What Is It Like to Grow Up With A Mentally Challenged
Sibling? (384 KB)
SIB Winter 2004 - Take a
Break and Enrich Your Sibling's World (40 KB)
SIB Fall 2000
- Genetics & Genetic Counseling (159 KB)
SIB Fall 1998 - Advocacy (81
KB)
SIB Fall 1997 - Health & HealthCare (57 KB)
SIB Fall 1996 - Respite & Residential Services
pdf in spreads: pages
1 & 8,
2 & 3,
4 & 5,
6 & 7
SIB Fall 1995 - Entitlements
pdf in spreads: pages
1 & 6,
2 & 3,
4 & 5
SIB May 1994 - Guardianship
pdf in spreads: pages
1 & 8,
2 & 3,
4 & 5,
6 & 7

SIB Fall 2000 - Genetics &
Genetic Counseling
SIB Fall 1998 - Advocacy
SIB Fall 1997 - Health &
HealthCare
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SIB Abstracts
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SIB Volume 5,
Number 1 Fall 2000
Genetics and Genetic Counseling
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The new fall issue of the SIB Bulletin
focuses on a topic that is of great importance to people whose siblings
have mental retardation and other developmental disabilities. The topic
is Genetics and Genetic Counseling, a very useful branch of science that
has made it possible for scientists and doctors to determine some of the
forms of mental retardation that are inherited.
Although a lot remains unknown and geneticists aren’t always
able to provide a definite answer it is important to know that there are
options available to help in the decision making process. A list of valuable Genetic centers throughout the
metropolitan area along with some helpful websites that can provide you
with more detailed information on the subject is also provided. In order
to insure that readers get a true feel of what to expect and what may be
expected of them with regard to genetics and genetic counseling,
“scenarios” are offered from siblings who have undergone genetic
testing and counseling. These siblings share their own experiences as
well as their opinions on the subject. AHRC’s Sibling Committee has gathered a lot of information
in order to provide their readers with a clear, well-rounded
understanding of this difficult and relatively new field of science so
don’t miss it!
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SIB Volume 4,
Number 1 Fall 1998
Advocacy
To advocate is to
support for a particular issue or cause on behalf of others or yourself. The latest
SIB publication focuses on advocating for your sibling with a developmental
disability. Acting as an advocate on your siblings behalf may allow you to
directly affect the issues and concerns you and your sibling with a disability
are faced with daily. SIB offers tips on how siblings can effectively advocate
with their sibling's agency and/or service provider; the best approaches for
making changes at local, state and federal governmental levels and advice
related to public education. Additionally there is guidance on starting an
advocacy group. Recommendations for
specific issues are also offered in scenarios taken from real life situations
where advocating for a sibling had favorable outcomes. This SIB issue contains
a list of some important websites that can assist one in effecting systems
change. Guidelines are also provided to
ensure that your online advocacy attempts will be as effective as possible.
Lastly, the Sibling Committee has included a list of telephone numbers that
will aid you in your attempts to gather
information and to begin networking with others who are in the position
to support your advocacy efforts.
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SIB Volume 3, Number 2
Fall 1997
Health and Healthcare
Healthcare systems are difficult for most of us to navigate, but people
with developmental disabilities are likely to need special support in
this realm. Because they often pay for healthcare services with
Medicaid, people with developmental disabilities are sometimes less
privileged patients than those with more "purchasing power" to wield at
private practices. Communication is also an issue, as people with
disabilities might have trouble providing healthcare workers with
necessary information regarding their ailments. These financial and
communication issues are often compounded by the fact that many people
with developmental disabilities have multiple physical problems and
sometimes mental health problems, such as depression and substance
abuse. This edition of SIB outlines several important factors to
consider when helping developmentally disabled siblings to arrange for
healthcare. Topics discussed include: Choosing a Health Care Provider
(with information on general medical care, specialized clinics and
managed care); Special Needs to Think About; Caring or Overseeing Care
For Your Sibling (including information on hospitalizations, treatment
decisions, informed consent, surrogate court decision making, advanced
directives and home care); Mental Health & Developmental Disabilities
(dual diagnoses); Dental Care; Health and Wellness; and Long-Distance
Care. The issue contains much important information and advice on
healthcare matters.
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For further
information on services and events , call Annette Spallino, Sibling Services Manager, at 212-780-2592. |
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Please visit the Family and Sibling Resources
section on the AHRC Web Site for additional resources available on the
internet. If you would like more
information on discussion groups and listservs, please
click
here for a sibling support website.
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